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The Man Who Was Immune to AIDS

But not what came after.

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Steve Crohn, in his late 20s, on Fire Island.  

Steve Crohn seemed almost euphoric, as if relieved to be checking off items on a list that had grown overwhelmingly long. In July, he flew to London to install one of his paintings in the home of the friends who’d commissioned it. Back in New York, he caught up with emails, left messages on machines, never mentioning or exhibiting any despair. Over lunch with the dean of his alma mater, he offered to provide photos he’d taken in the ’60s for an exhibition on the civil-rights movement. To his younger sister he mailed a birthday card featuring a tabby cat, apparently knowing full well the circumstances under which it would later arrive. He made lists of his bank accounts and passwords. Check, check, check.

And he finished his maps. For his entire life as an artist—he was now 66—he’d had to support himself and give structure to his existence with various day jobs: copyediting, magazine production, interior design, social work. But proofreading for Fodor’s was his longest-running gig, and perhaps the most congenial. He could do it from home, or what now passed as home. And for a punctilious person, it could be oddly satisfying. He would carefully read the manuscripts of travel books the publisher was preparing, compare the texts to the maps, and make sure everything mentioned in one was accurately pictured in the other. This time, this last time, he saw that the restaurant 2 Fools and a Bull was missing from the Oranjestad detail. The Tropicana Aruba resort on Eagle Beach had also gone missing. He neatly noted these mistakes, then brought the completed work to the Random House building, leaving it at the lobby desk. This was last August, Thursday the 15th, 1:30 in the afternoon.

Perhaps you saw him that pleasant day: one of those friendly-looking gay New Yorkers, aging but not old, thick but not fat, six-footish, with blue eyes and a slight dusting of ginger in the white fuzz haloing his face. Beefy worker’s hands, yet with a fine gold band on the right ring finger. Busy like someone with lots of work and places to be—though this was a front. He was freelance in the largest sense: unattached, perhaps unattachable. Most of all he was a survivor, which to him meant not just being but being special. He smoked Dunhills. Brushed his teeth with Vade­mecum. Was hearty with strangers, dapper at cocktails, cultivating the air of a wealthy eccentric despite his Social Security check. He dressed just so: often a neckerchief jauntily affixed, a beanie or a bolo tie, a popped collar, interesting socks. He had the verbal flair of Oscar Wilde if Wilde had 12-stepped. “Darling!” he’d call anyone. Or, an encouragement: “Go you!”

The obituaries got a lot wrong, but this much was right: Stephen Lyon Crohn didn’t die of AIDS. Not dying of AIDS was in fact the reason he got obituaries at all. Certainly it wasn’t because of his hundreds of artworks, however beautiful; few people had seen them. Being the great-nephew of the great Burrill Crohn—the doctor who described and gave his name to the chronic inflammatory disorder—was a piquant detail but not the point. No, it was Steve’s own medical description that earned him inches in the Daily News: “ ‘The Man Who Can’t Catch AIDS’ commits suicide at age of 66.” Or, as the Los Angeles Times put it: “Immune to HIV but not its tragedy.”

It was true: Steve was one of a surpassingly small number of people on Earth whose bodies essentially ignored HIV. And he was one of an even smaller subset who had occasion to find out. Back in the early 1980s, at a time when thousands of gay men, including dozens Steve knew and loved, began dying, he kept on living. Surely he’d been multiply exposed, and yet as he waited a year, and then many, to join those he’d lost, he came to realize that his body would not give him the chance. Frantic to find out why, he went from doctor to doctor, all but begging someone to study him; when eventually someone did, a great discovery was made. Not only had he inherited a genetic mutation that spared him, but that knowledge would lead to the development of a drug that even now helps sustain the lives of people not as lucky as he. “He realized that he could provide a piece of the jigsaw,” one researcher said, “and he was right.”

Steve, whose story was told in medical journals and in a 1999 Nova documentary, ought to be known as one of the heroes of the effort to dredge knowledge and life from death and disaster; perhaps he sometimes saw himself that way. And yet, having delivered his maps, having removed his ring, paid some bills, made some donations, and dealt with a hundred other details, he killed himself on Saturday, August 24. That he did so some 30 years after AIDS first spared him gave the headline writers their hook. Every obituary mentioned survivor guilt, as if this term, borrowed from the Holocaust, were a clear explanation. In fact, it was a provocation. One online commenter wrote: “If he cared about others he would have stayed healthy to help find a cure for others.” Another: “A horrible, pathetic, loser. He WANTED to get AIDS … Selfish … He had NO problem, so he killed himself.”


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